Patient Priorities for Modern Drug Development

Clinical trials shouldn’t be a mystery—and access to breakthrough treatments shouldn’t depend on your zip code, financial status, or who you happen to know.

This hub is your crash course in how medicines are made, how trials work, how medicines are regulated, and how patients can shape the future of drug development.

Missed the conversation or want to dig deeper? You’re in the right place. This is your one-stop hub for key takeaways, tools, and resources to review or share with your community.

Watch the Full Webinar

We brought together a powerful mix of voices—from those living the experience to those reshaping the system—to unpack clinical trial realities, expose systemic barriers, and chart a more inclusive, patient-driven path forward.

Webinar Materials


Presentation Slides

Full deck from the webinar—packed with stats, visuals, and context to help you follow along or share with others.


Terms & Definitions

The language of clinical trials can be dense, technical, and hard to navigate—especially for those outside the research world. We believe patients deserve plain-language explanations.


Resource Library

We pulled together a shortlist of standout resources related to the key topics covered in the webinar–from practical tools and advocacy platforms to insightful newsletters and key issue explainers.

*Note: This isn’t a full list of everything out there, but it’s a great starting point if you’re ready to learn more, take action, or help someone else navigate the system.

Looking to learn more? Check out additional NPLB patient webinars here.

NPLB Letter to the FDA

Read NPLB’s public comment letter to the Food and Drug Administration, offering critical insights into the reauthorization of the Prescription Drug User Fee Act (PDUFA).

Your Voice Matters

What good is innovation if it’s inaccessible to the people who need it? By raising your voice, you help expose the gaps and push for a system that delivers—not just discovers.

Patients deserve a seat at the table. Share your story, speak out, and help us challenge the broken systems that make care unaffordable—because no one should have to choose between medicine and basic needs.

Questions? Want to get more involved?

We’re here to help. Reach out to the NPLB team at hello@nopatientleftbehind.org or connect with any of our webinar speakers:

Valarie Traynham

Breast Cancer & Multiple Myeloma Advocate
valarie@healthtree.org


Ashlee Cramer

Cancer Advocate, Caregiver
ashleeproutycramer@gmail.com


Amy Cohen

Sickle Cell Advocate & Patient Trust Expert
amy@thepatientroom.com