NEW:
Small molecule IRA sign on letter

_{Why fixing the IRA matters to all of us}

Making medicines affordable for everyone across America

No one should go broke, skip their medications, or even die because they can't pay their out-of-pocket costs or afford health insurance in the first place.

Help for patients Our priorities Our videos

Learn how the IRA makes new small molecule R&D uninvestable for diseases of aging

to the detriment of patients, innovators, & society

NEW: Small molecule IRA sign on letter
_{Why fixing the IRA matters to all of us}Read Key Points and FAQs regarding the importance of small molecule innovation
Read an investor analysis of the Inflation Reduction Act‍
_{Learn what this bill will mean for future cures.}

Watch our Webinar on the impact of the Inflation Reduction Act for Biotech Builders

September 20, 2022 - Experts from the innovator, investor, and health plan communities provide analysis for biotech leaders on the impacts of new IRA legislation--and propose fixes to make it better for patients and innovators.

View our webinars page here.

Our Call to Action

Leading biopharma Innovators, investors, and patient groups urged congress to solve affordability for patients through insurance reform. More than 300 industry leaders share ideas on how to save all Americans money while preserving research and development. Caution that government price controls will cease biopharma investment and significantly reduce availability of new medicines. Read what more here.

Become a First Responder & Thought Partner

Sign up to receive action alerts.

‍Help protect access to lifesaving medicines & preserve innovation for those still waiting for a cure.

Our Videos & Animation

Explore NPLB's core principles, positions and plans to make medicines affordable for all Americans, encourage innovation, and ensure that patients are heard.

What we're tweeting (and retweeting)

Follow us @NPLB_org

Follow us @NPLB_org

No Patient Left Behind

@UncoveredHealth shines light on how @cigna overutilizes prior authorization red tape to deny/delay patient care but underutilizes physicians to review PPACA-mandated customer/patient appeals. @CMSGov @USDOL @wendellpotter @loopcoalition https://t.co/HH3inuFg4O https://t.co/DeVATAYGxE

Thu May 11 15:16:24 +0000 2023

No Patient Left Behind

First step toward updating faulty CEA math. @TuftsCEVR @PSynnott29 “CEA Registry to highlight that relatively few studies have included broader elements of value or life-cycle pricing.” @icer_review @CMSGov @NICEComms https://t.co/IrSx8Co7Fm

Mon May 08 16:26:33 +0000 2023

No Patient Left Behind

@PeterNeumann11 @PSynnott29 @joeymattingly @brootmcq @PeterKolchinsky @drddawoud GCEA value flower is allergy free w/zero harmful side-effects!!!

Mon May 08 16:03:03 +0000 2023

No Patient Left Behind

RT @PeterKolchinsky: I’m headed to #ISPORAnnual to talk about generalized cost-effectiveness analysis (GCEA). Investors like me try to unde…

Mon May 08 13:08:20 +0000 2023

No Patient Left Behind

Happy Saturday morning cartoons! Click below to watch our GCEA animation. Find out what happens to patients, their caregivers, & society when health insurers tear off petals from the Rx value flower... @CMSGov @BrooksLaSureCMS @ISPORorg @TuftsCEVR @SchaefferCenter @drmeenasesh https://t.co/W6vF7TrVvi

Sat May 06 12:35:00 +0000 2023

No Patient Left Behind

Yikes! Scary image of @nicecomms "toxic math" invading U.S. via @icer_review to shape @CMSGov IRA rules. Latest @RApport_bio @PeterKolchinsky Q&A w/J Dallas helps inoculate against faulty CEA math & highlights quantifiable patient/societal GCEA values NICE CEAs knowingly omit. https://t.co/WDwxe8p4Zv https://t.co/q03N8Ngu6r

Wed May 03 16:32:57 +0000 2023

No Patient Left Behind

@CMSGov @CMSinnovates Beware of @NICEComms "toxic math" invading US benes MAPD Rx access via @icer_review's faulty math. @rapport_bio article from UK R&D head J Dallas & @PeterKolchinsky shares how we all lose when govt. & health plans ignore true value of Rx to patients/society https://t.co/EYALo6EFh1

Wed May 03 14:22:47 +0000 2023

No Patient Left Behind

Thank you @ldtimmerman @DesertBiopharma @jmaxlevin @PeterKolchinsky for highlighting need to fix IRA. Easiest way for investors & innovators to help pitch in w/impact is to add your name to below call to action. https://t.co/cu7cJmaqqy https://t.co/dPcJ8r0DPO

Mon May 01 18:05:18 +0000 2023

No Patient Left Behind

@patientsrising podcast listeners can learn more about how @icer_review & UK's @NICEComms use faulty cost-effectiveness (CEA) math to ignore the patient & societal value of medicines here: https://t.co/3MkjjBkrSP https://t.co/iqlFzfwtfH

Mon May 01 15:06:10 +0000 2023

No Patient Left Behind

@DesertBiopharma "The [IRA] fix is straightforward: we need 13yrs for small molecules, as we have for biologics, for investors to continue supporting this area. It's not like small molecules cost less to develop or less risky to develop than biologics." https://t.co/JWAkFWXRtY

Mon May 01 14:32:27 +0000 2023

No Patient Left Behind

@CMSGov @CMSinnovates @Kff Best way to fix MAPD plans from over-utilizing prior authorization to hassle sick patients & docs w/red tape is require $0 copay/coinsurance coverage when treatment eventually approved (by AI or human or doc). https://t.co/guuKL8ht0J

Sun Apr 30 15:35:39 +0000 2023

No Patient Left Behind

W/o your voice, threat to biotech R&D remains. Policymakers representing the largest MA plans & PBMs want the govt. to set Rx prices @5yrs after approval w/o requiring new help to MA benes such as guaranteeing lower copays & deductibles or adding a $2000 Part B catastrophic cap.

Tue Apr 25 12:41:01 +0000 2023

What we're tweeting (and retweeting)

No Patient Left Behind

@UncoveredHealth shines light on how @cigna overutilizes prior authorization red tape to deny/delay patient care but underutilizes physicians to review PPACA-mandated customer/patient appeals. @CMSGov @USDOL @wendellpotter @loopcoalition https://t.co/HH3inuFg4O https://t.co/DeVATAYGxE

Thu May 11 15:16:24 +0000 2023

No Patient Left Behind

First step toward updating faulty CEA math. @TuftsCEVR @PSynnott29 “CEA Registry to highlight that relatively few studies have included broader elements of value or life-cycle pricing.” @icer_review @CMSGov @NICEComms https://t.co/IrSx8Co7Fm

Mon May 08 16:26:33 +0000 2023

No Patient Left Behind

@PeterNeumann11 @PSynnott29 @joeymattingly @brootmcq @PeterKolchinsky @drddawoud GCEA value flower is allergy free w/zero harmful side-effects!!!

Mon May 08 16:03:03 +0000 2023

No Patient Left Behind

RT @PeterKolchinsky: I’m headed to #ISPORAnnual to talk about generalized cost-effectiveness analysis (GCEA). Investors like me try to unde…

Mon May 08 13:08:20 +0000 2023

No Patient Left Behind

Happy Saturday morning cartoons! Click below to watch our GCEA animation. Find out what happens to patients, their caregivers, & society when health insurers tear off petals from the Rx value flower... @CMSGov @BrooksLaSureCMS @ISPORorg @TuftsCEVR @SchaefferCenter @drmeenasesh https://t.co/W6vF7TrVvi

Sat May 06 12:35:00 +0000 2023

No Patient Left Behind

Yikes! Scary image of @nicecomms "toxic math" invading U.S. via @icer_review to shape @CMSGov IRA rules. Latest @RApport_bio @PeterKolchinsky Q&A w/J Dallas helps inoculate against faulty CEA math & highlights quantifiable patient/societal GCEA values NICE CEAs knowingly omit. https://t.co/WDwxe8p4Zv https://t.co/q03N8Ngu6r

Wed May 03 16:32:57 +0000 2023

No Patient Left Behind

@CMSGov @CMSinnovates Beware of @NICEComms "toxic math" invading US benes MAPD Rx access via @icer_review's faulty math. @rapport_bio article from UK R&D head J Dallas & @PeterKolchinsky shares how we all lose when govt. & health plans ignore true value of Rx to patients/society https://t.co/EYALo6EFh1

Wed May 03 14:22:47 +0000 2023

No Patient Left Behind

Thank you @ldtimmerman @DesertBiopharma @jmaxlevin @PeterKolchinsky for highlighting need to fix IRA. Easiest way for investors & innovators to help pitch in w/impact is to add your name to below call to action. https://t.co/cu7cJmaqqy https://t.co/dPcJ8r0DPO

Mon May 01 18:05:18 +0000 2023

No Patient Left Behind

@patientsrising podcast listeners can learn more about how @icer_review & UK's @NICEComms use faulty cost-effectiveness (CEA) math to ignore the patient & societal value of medicines here: https://t.co/3MkjjBkrSP https://t.co/iqlFzfwtfH

Mon May 01 15:06:10 +0000 2023

No Patient Left Behind

@DesertBiopharma "The [IRA] fix is straightforward: we need 13yrs for small molecules, as we have for biologics, for investors to continue supporting this area. It's not like small molecules cost less to develop or less risky to develop than biologics." https://t.co/JWAkFWXRtY

Mon May 01 14:32:27 +0000 2023

No Patient Left Behind

@CMSGov @CMSinnovates @Kff Best way to fix MAPD plans from over-utilizing prior authorization to hassle sick patients & docs w/red tape is require $0 copay/coinsurance coverage when treatment eventually approved (by AI or human or doc). https://t.co/guuKL8ht0J

Sun Apr 30 15:35:39 +0000 2023

No Patient Left Behind

W/o your voice, threat to biotech R&D remains. Policymakers representing the largest MA plans & PBMs want the govt. to set Rx prices @5yrs after approval w/o requiring new help to MA benes such as guaranteeing lower copays & deductibles or adding a $2000 Part B catastrophic cap.

Tue Apr 25 12:41:01 +0000 2023

No Patient Left Behind

It is easy & free to stand up for the biotech ecosystem. Learn how #IRA already harming today's small molecule R&D decisions here. R&D should follow science, not partisan politics: https://t.co/L4RhNHCqjH

Tue Apr 25 12:41:01 +0000 2023

No Patient Left Behind

RT @steveusdin1: The biopharma industry is planning a blizzard of litigation that could delay, modify, perhaps derail implementation of the…

Fri Apr 21 19:53:30 +0000 2023

No Patient Left Behind

Fascinating @armandalegshow look @ how health care/insurance actually works. Lisa French was told she would have to pay $1,337 in OOP costs. Hospital sent her a bill for $229K. When she didn’t pay, the sheriff served her with a lawsuit & the hospital sued her (not the insurer). https://t.co/ZSZYBURm4T

Thu Apr 20 13:52:21 +0000 2023

No Patient Left Behind

ICYMI: #White64 @NPLB_org's "Abbie" video that highlights impact of insurers high out-of-pocket costs on patients & their families was nominated by @TheOneClub as one of year's best. Reminder of why we fight for biotech affordability & innovation. https://t.co/2I7HzFUwlQ

Wed Apr 19 16:48:05 +0000 2023

No Patient Left Behind

ICYMI: @NPLB_org's "Abbie" video that highlights impact of insurers high out-of-pocket costs on patients & their families nominated by @TheOneClub as one of the year's best. Important reminder about why we fight for biotech affordability & innovation. https://t.co/2I7HzFUwlQ

Wed Apr 19 16:42:47 +0000 2023

No Patient Left Behind

"the simplified math that [CEA entities] use is a barrier to access when payors [Govts & insurers] use it as the reason they deny [patients] access [to prescribed treatments].. (eg @icer_review's framework ignores many demonstrable values, like fact that medicines go generic...)" https://t.co/BeiTESpYvl

Thu Apr 13 15:12:06 +0000 2023

No Patient Left Behind

CMS IRA Rx "negotiation"/price-setting rule. Still time for biotech investors, innovators, researchers, & patients to submit public comments by EOD 4/14! Need help? Link to "how to" comment guide below. Don't let stakeholders say they never heard from you! https://t.co/xMMeoHPsS1

Thu Apr 13 14:57:03 +0000 2023

No Patient Left Behind

RT @PearlF: I missed this the 1st or 2nd time it went around, but if your biopharma/biotech company is writing an email to CMS for Friday's…

Tue Apr 11 19:17:07 +0000 2023

No Patient Left Behind

Mifepristone Ruling: Not too late to sign letter in support of FDA's Rx regulatory authority: https://t.co/Vlpf2qKFCq https://t.co/fHCVB4sWM0

Mon Apr 10 17:57:25 +0000 2023

No Patient Left Behind

2) Join biotech investors, innovators, & patient advocates to prioritize fixing IRA so that it treats small & large molecule innovation equally. 1/2 of new FDA oncology drugs are small mol -- w/o fix, IRA makes war against cancer harder. Click link to sign https://t.co/ELYpm94u4d

Mon Apr 10 11:46:26 +0000 2023

No Patient Left Behind

Mifepristone Ruling: Biotech leaders are gathering signatures for a one page letter (link to sign at bottom). https://t.co/Vlpf2qKFCq https://t.co/UF3oy5OYLP

Sat Apr 08 15:36:39 +0000 2023

No Patient Left Behind

“Truth seeking independent bodies assimilate new information… political entities resist it. Which are you? @icer_review” https://t.co/vPQtehE5FR

Fri Apr 07 17:51:31 +0000 2023

No Patient Left Behind

“Brazil is making the same mistakes other countries have when considering the value of medicines. They go generic and become public goods.” https://t.co/VzlZHX9hgR

Fri Apr 07 16:34:13 +0000 2023

No Patient Left Behind

After reading @DesertBiopharma post-IRA small molecule R&D impact survey, please consider signing & sharing our innovators call to action. Biotech cannot defeat oncology when IRA effectively removed half the arrows in R&D quiver. https://t.co/PbPhIJHPM3 https://t.co/IJtQ3dlkcN

Tue Apr 04 14:01:10 +0000 2023

No Patient Left Behind

Powerful @Carolynyjohnson reporting: how health plans (ab)use high OOP costs, prior auth, & red tape to deny premium-paying customers access to "covered" treatments. When will @potus @cmsgov end health plan tactics that bully & deny sick patients care? https://t.co/DZREVjCN9h

Tue Apr 04 13:53:40 +0000 2023

No Patient Left Behind

Ditch @ConanOBrien & @SmartLess today. Recommended drive/subway (metro/T) time listening w/@PeterKolchinsky @RACapital @NPLB_org & @njlittman to discuss his book “The Great American Drug Deal", the biotech social contract, & importance of biotech affordability & innovation. https://t.co/8C0xPQTJYC

Mon Apr 03 16:16:00 +0000 2023

No Patient Left Behind

@JoshuaPCohen1 @icer_review @NICEComms @CADTH_ACMTS faulty & outdated math needs a complete overhaul beyond QALY. Read how it can be improved to include real-world patient & societal benefits (animation & ppt), not just interests of plan actuaries managing a plan year. https://t.co/jgJDsK2xHy

Mon Apr 03 13:21:53 +0000 2023

No Patient Left Behind

Insurers use faulty cost-effectiveness (CEA) math to deny coverage and charge high co-pays—even for life-saving and life-improving treatments prescribed by a physician.

Fri Mar 31 13:35:38 +0000 2023

No Patient Left Behind

We’re committed to using better, patient-centric and societal math through “generalized cost-effectiveness analysis” (GCEA). Check out our GCEA animation to learn more about the value of medicines. https://t.co/3MkjjBkrSP

Fri Mar 31 13:36:08 +0000 2023

No Patient Left Behind

RT @ISPORJournals: Cost-effectiveness analyses should include price declines often accompanying loss of exclusivity. Leaving future prices…

Thu Mar 30 20:38:16 +0000 2023

No Patient Left Behind

More evidence health plans use high OOPCs as strategy to deny care. "High out-of-pocket costs have largely been eliminated for screening mammography," yet "still serve as financial barriers to patients undergoing subsequent diagnostic tests" @loopcoalition https://t.co/L0JCWO3lMD

Thu Mar 30 14:15:20 +0000 2023

No Patient Left Behind

Tiramisù-y Icebox Cake Recipe | Bon Appétitc ck # https://t.co/UfPstbpHx6

Mon Dec 19 22:21:09 +0000 2022

No Patient Left Behind

ICYMI: ICER-AHIP deal to expand influence of faulty, outdated CEA math on plan coverage (e.g. denial) & copay decisions is bad for patients. Check out our new animation to see how they get the math wrong & use it to limit access to prescribed treatments. https://t.co/WWsq65QBtN https://t.co/YRdBKjvGa9

Fri Dec 16 14:08:51 +0000 2022

No Patient Left Behind

For insurance to really be insurance, it should fully cover the drugs your doctor prescribes when you’re sick—without high out-of-pocket costs. After all, what are premiums for? https://t.co/QAmA6trmIf

Tue Dec 13 01:26:00 +0000 2022

No Patient Left Behind

RT @DrugChannels: Powerful 🧵 from @PeterKolchinsky

Sun Dec 11 22:59:15 +0000 2022

No Patient Left Behind

Thank you @drugchannels! When medicines are worth it & right for you, insurance should cover them without high out-of-pocket costs. Our GCEA animation shows how insurers & HTA entities use faulty, outdated math to limit patient access to prescribed therapies. https://t.co/YzDRo935d9

Sat Dec 10 15:09:34 +0000 2022

No Patient Left Behind

Orphan disease exemptions under the #IRA apply to drugs with one indication, whereas small company exemptions only apply for two years—incentivizing better marketing, not increased spending on innovation. Learn more: https://t.co/ENArnPGoZE

Sat Dec 10 14:22:00 +0000 2022

No Patient Left Behind

Continued biopharmaceutical innovation is needed for the millions of patients living without cures or effective treatments. That’s why we support insurance reform to preserve innovation and protect access to life-saving medicines. https://t.co/Mx394Aza42

Mon Dec 05 23:20:00 +0000 2022

No Patient Left Behind

RT @TuftsCEVR: In a new paper, @jcohen1964 found that accounting for generic pricing can make cost-effectiveness ratios substantially more…

Wed Nov 30 14:37:48 +0000 2022

No Patient Left Behind

“First Responders” are people who are prepared to advocate for healthcare reform and ensure biotech affordability and innovation. Sign up today: https://t.co/Tu7lhfzoSN

Sat Nov 26 12:15:00 +0000 2022

No Patient Left Behind

@BowTiedBiotech @JebKeiper @NimbusTx Best way to simply fix IRA is begin Medicare price setting for small molecules at 13 years after FDA approval. Proposal would not delay implementation timeline. Can read more here: https://t.co/AaI0yWnIOM

Thu Nov 24 13:11:19 +0000 2022

No Patient Left Behind

@JebKeiper @NimbusTx Thank you for your leadership @JebKeiper & @NimbusTx. @MassBio @RepRichardNeal Smart modification to IRA in Medicare extenders package can preserve small molecule innovation, ensure patient Rx affordability, & win new support for law's implementation.

Thu Nov 24 12:49:18 +0000 2022

No Patient Left Behind

“Inflation in the medical sector will mean higher premiums, deductibles, and out-of-pocket costs.” Read how insurance companies are profiting from medical inflation at the expense of you and me. https://t.co/820WP19tF5

Sat Nov 19 13:09:00 +0000 2022

No Patient Left Behind

“@IQVIA_US shows that OOP on insulin declined $500 million since 2018, but that’s nowhere near growth in value of the rebate growth over the same time.” Wow. What are premiums for if vertically integrated insurers/PBMs/specialty keep Rx discounts for themselves vs sick customers? https://t.co/wovRZIfgfw

Fri Nov 18 19:10:18 +0000 2022

No Patient Left Behind

@costplusdrugs @isabellacueto "Medicare could have saved up to $3.6 billion in 2020 — or 37% of the $9.6 billion spent on 77 of 89 different prescription medicines." @cmsgov Imagine how much beneficiaries could have saved in corresponding reduced copays! https://t.co/7l8ig2XEiK https://t.co/JquxRi6urp

Wed Nov 16 15:54:55 +0000 2022

No Patient Left Behind

Thank you @G17Esiason for highlighting @statnews need for insurance & PBM reforms. Plans must ensure prescribed therapies approved for coverage are affordable to patients — not rebates for steering $$ to vertically integrated cos. What are premiums for anyway? @loopcoalition @FTC https://t.co/NPrt4hsdyN

Wed Nov 16 15:41:35 +0000 2022

No Patient Left Behind

@PeterKolchinsky “We’ll always owe Ukraine. Let’s send more aid.” @POTUS @SecBlinken @SenatorMenendez https://t.co/quOmpHGtoa

Tue Nov 15 13:21:57 +0000 2022

No Patient Left Behind

@ThePFID “Urgent public health needs demand passage of the PASTEUR Act.” https://t.co/luYy4oXoav

Mon Nov 14 18:19:23 +0000 2022

No Patient Left Behind

Easy to agree w/@G17Esiason “Why have people been gaslighted to believe benefit design isn’t the problem?” What are premiums for anyway if not to make sure prescribed treatments are affordable to patients? @loopcoalition @FTC @CMSGov https://t.co/2afx7NwOIL

Sat Nov 12 17:07:55 +0000 2022

No Patient Left Behind

RT @loopcoalition: Millions of Americans who enroll for health insurance this fall still won’t be able to easily afford the health care the…

Mon Nov 07 16:49:59 +0000 2022

No Patient Left Behind

RT @rapport_bio: Learn from experts in the innovator, policy, and investor communities as they provide analysis for biotech leaders on the…

Thu Nov 03 20:40:02 +0000 2022

No Patient Left Behind

Read @rapport_bio @PeterKolchinsky on how “IRA law already is influencing small molecule & orphan drug R&D prioritization.” 9 years is too short. Govt. price setting at 13 yrs for pills & injectables can restore vital R&D incentives & parity. Critical fix can pay for itself! https://t.co/ij9UYwgpgZ

Mon Oct 31 16:14:14 +0000 2022

No Patient Left Behind

“Black adults who have had health care debt are twice as likely as white adults with such debt to say they’ve been denied care because they owe money.” Powerful @NoamLevey data & reporting. @loopcoalition https://t.co/Kdlga9FmoH

Fri Oct 28 22:53:50 +0000 2022

No Patient Left Behind

Powerful @NoamLevey @KHNews @NPRHealth reporting. “Diagnosed w/ cancer 5 years ago, Reed underwent surgery & chemotherapy. Although she had health insurance through work, she was left w/ close to $10,000 in medical bills she couldn’t pay.” What are premiums for? @loopcoalition https://t.co/Wlvy4BNjZ1

Fri Oct 28 22:43:12 +0000 2022

No Patient Left Behind

@TuftsCEVR report quantifies how most traditional CEAs ignore real world patient, family, & societal values. Registry baseline a call to action. Time to improve faulty CEA math that govts & plans use to deny Rx access. Learn how to do better CEA math @ https://t.co/MOCX5uKvNc https://t.co/VQB6BMMBXN

Thu Oct 27 17:15:35 +0000 2022

No Patient Left Behind

“Although UNH’s profits have increased exponentially over the past 10 years, it had nearly *400,000 FEWER* people enrolled in health plans serving people in the private sector on September 30, 2022, than on September 30, 2012.” @wendellpotter https://t.co/bsx9AsBkfw

Mon Oct 17 11:47:39 +0000 2022

No Patient Left Behind

@FTC @BrooksLaSureCMS 👀@DrugChannels visual on how plans can use vertical integration to shift regulated MA PMPM $$ to unregulated sister cos. Scheme maximizes parent org revenues, profits, & stock prices w/o passing intended savings to taxpayers or benes. Fix in'24 rate notice! https://t.co/9KdY9MjcOc

Thu Oct 13 13:13:23 +0000 2022

No Patient Left Behind

The IRA aimed to reduce drug costs, but key provisions could create a negative environment for investment and innovation. Watch our recent webinar exploring the impacts of Part D Redesign, drug “negotiation,” and inflation rebates on innovators & patients: https://t.co/ENArnPoNB4

Mon Oct 10 22:30:00 +0000 2022

No Patient Left Behind

@realclearhealth "Insurance companies and industry middlemen should not be able to undermine this [doctor-patient] relationship to ensure greater profits. Copay assistance ‘adjustment’ policies need to end." https://t.co/gP8KgG12D9

Wed Oct 05 14:13:53 +0000 2022

No Patient Left Behind

@costplusdrugs "using business as a force for positive change. Helping companies reduce their employee health insurance costs means they can use that money for other innovations & drive economic growth" ICYMI @BizRoundtable @USChamber @ERISAIndCmte https://t.co/RIkDOXSIou

Tue Oct 04 20:22:06 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: @barttels2 @AngryCardio @LifeSciVC @NPLB_org Considering that critics give no credit for genericization, the trillions…

Fri Sep 30 17:32:51 +0000 2022

No Patient Left Behind

Learn why we should prioritize generalized cost-effectiveness analysis (GCEA) over the outdated math used by ICER, NICE, and their peers. https://t.co/ivoUn53wWN

Thu Sep 29 16:00:19 +0000 2022

No Patient Left Behind

ICYMI @ERISAIndCmte @USChamber @BizRoundtable Market disruption by @costplusdrugs = huge generic Rx savings for self-insured employers & lower out-of-pocket costs (and premiums?) for employees. Employer decision-making can speed #PBMReform https://t.co/NKFvYjDfQY

Mon Sep 26 17:40:43 +0000 2022

No Patient Left Behind

@G17Esiason “Congress needs to support antibiotic development with no-nonsense legislation.” https://t.co/2pSYiEimhN

Sun Sep 25 14:59:19 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: Congress is on the verge of gutting cancer & Alzheimer’s R&D w/ a few careless lines in reconciliation bill b/c seemin…

Thu Jul 14 18:55:56 +0000 2022

No Patient Left Behind

“But patients are increasingly on the hook for large bills because of deductibles and other health plan cost sharing.” What are insurance premiums for if plans still leave patients on the hook for large bills and costly medical debts? @loopcoalition https://t.co/sb7Esgi5RX

Mon Jul 11 23:23:22 +0000 2022

No Patient Left Behind

RT @rapport_bio: The new Senate drug bill is bad for innovation and "falls short of a generational opportunity to meaningfully lower Medica…

Fri Jul 08 19:32:54 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: The approach @MorningstarInc relies on is demonstrably absurd and oversimplified. It pretends drugs don’t go generic,…

Tue Jul 05 17:00:01 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: @johnzabroski @MorningstarInc @NPLB_org https://t.co/3aupv9c4Ao

Tue Jul 05 16:59:32 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: To learn more about the complexities of valuing medicines (figuring out if they are "worth it"), No Patient Left Behin…

Fri Jul 01 13:24:35 +0000 2022

No Patient Left Behind

RT @loopcoalition: NEW from @NoamLevey at @KHNews: Former Kaiser CEO George Halvorson cited the growth of high-deductible health insurance…

Fri Jun 17 23:18:22 +0000 2022

No Patient Left Behind

RT @KHNews: New KHN-@NPR investigative series #DiagnosisDebt examines pervasive medical debt hidden as credit card balances, loans from fam…

Thu Jun 16 15:01:14 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: For anyone who heard of the biotech “Downturn Concepts/Tools” webinar Tess Cameron and I hosted with Dan Lepanto of @S…

Sat Jun 11 23:12:38 +0000 2022

No Patient Left Behind

RT @rapport_bio: With all the hype around Covid and monkeypox, it’s easy to forget that viruses aren’t the only infectious game in town. So…

Sat Jun 11 09:00:17 +0000 2022

No Patient Left Behind

@GoodRx @benefitspro "It’s about affording routine drugs for chronic conditions & finding that their insurance doesn’t cover what it used to... Americans are paying more out of pocket.” Join fight for insurance reform @NPLB_org @loopcoalition https://t.co/1R438Tfc3d

Thu Jan 13 17:27:26 +0000 2022

No Patient Left Behind

RT @PeterKolchinsky: This little girl, like many, knows more about American healthcare than she should. We tell her story and offer specifi…

Wed Jan 12 13:02:05 +0000 2022

No Patient Left Behind

RT @SecBecerra: More Americans than ever are gaining the affordable health coverage they need and deserve, thanks to the American Rescue Pl…

Tue Jan 11 00:18:50 +0000 2022

No Patient Left Behind

Informative @PeterKolchinsky @michael_gilman @TheWellNews op-ed makes case for BBB Rx fixes that lower Part D beneficiary copays & deductibles and preserve small-molecule R&D. Congress can achieve affordability & innovation @NPLB_org https://t.co/efg59lhEc0

Wed Jan 05 13:38:38 +0000 2022

No Patient Left Behind

Interesting read about how small-molecule R&D is crucial to biopharma innovation on behalf of patients and society. Achievable pro-beneficiary, pro-innovation, and pro-payer BBB fixes are worth it for us all. https://t.co/sKbquyCV4h

Wed Jan 05 02:10:44 +0000 2022

No Patient Left Behind

RT @loopcoalition: Cancer patients are paying higher and higher out-of-pocket costs for treatment and, according to a report from @American…

Wed Jan 05 01:53:47 +0000 2022

No Patient Left Behind

RT @PattyMurray: For too long, countless patients have been surprised by exorbitant bills for care they thought was covered by their insura…

Tue Jan 04 14:02:50 +0000 2022

No Patient Left Behind

Thank you @BethWaldron & @PeterKolchinsky for sharing facts about the fight to access doctor-prescribed therapies for 150K US blood clot patients. Unhealthy side-effect of plan/pbm vertical integration. Not so Happy New Year from @cvshealth 🤔 ICYMI @KarenSLynch @loopcoalition https://t.co/rnvi9XyGRP

Fri Dec 31 18:51:35 +0000 2021

No Patient Left Behind

@mikejopek's dad's "expensive insurance says his medicine is not covered under the drug plan he pays hundreds in monthly premiums. It’s a different tier they say." Join the fight for insurance reforms that lower out-of-pocket costs @NPLB_org @loopcoalition https://t.co/4nvOjURbIf

Wed Dec 29 14:37:44 +0000 2021

No Patient Left Behind

RT @G17Esiason: The CDC throwing subtle shade at hospital pricing and the OOP cost of care to people. Love that for our federal public heal…

Tue Dec 28 16:08:35 +0000 2021

No Patient Left Behind

RT @rachel_roubein: Biden admin repeals Trump's most-favored nation drug pricing rule, a pilot project to tie prices of some drugs in Medic…

Tue Dec 28 16:09:10 +0000 2021

No Patient Left Behind

RT @EBDgroup: It’s no secret that the biopharma industry is facing headwinds. But will Build Back Better be all bad? Register today to view…

Tue Dec 28 15:54:12 +0000 2021

No Patient Left Behind

“[Health plan network] terminations throw tens of thousands of patients into the difficult position of choosing between much higher out-of-pocket costs or leaving a trusted physician and hospital.” https://t.co/j2bEKBl4Rn

Tue Dec 28 13:59:40 +0000 2021

No Patient Left Behind

@NPRHealth: "This is a family under stress-a premature baby, dad w/a cancer diagnosis, a hospital saying they need to pay $45,000 a month. What did they do?" What are premiums for if insurers won't pay medically necessary claims? Join the fight @NPLB_org https://t.co/Muoy6eHpVx

Tue Dec 28 13:18:32 +0000 2021

No Patient Left Behind

@KHN: We spend ~12M hrs/wk calling our health plan (It also causes customer burnout). Which is more cumbersome, time consuming, and confusing -- speaking with your health plan or your mobile phone company? https://t.co/rBP89C8wEO

Mon Dec 27 21:27:13 +0000 2021

No Patient Left Behind

@NPRHealth @Reportersteph highlight apathy of insurers toward patient out-of-pocket costs. When health plans wouldn't pay a $550K tab for a newborn's ICU care, mom was given a "chance" to pay ~$46k/month. Join the fight for reform @loopcoalition @NPLB_org https://t.co/X1tr4M4mM9

Mon Dec 27 13:00:48 +0000 2021

No Patient Left Behind

RT @NPRHealth: Bill of the Month: $45,843 a month for a year for baby's NICU stay https://t.co/E9yIrDS4rW

Mon Dec 27 12:51:53 +0000 2021

No Patient Left Behind

"Nearly half of insured US adults report difficulty affording their out-of-pocket costs, and one in four report difficulty affording their deductible." Join the fight for insurance reforms @NPLB_org @loopcoalition https://t.co/YaqmUPA62a

Mon Dec 20 16:42:22 +0000 2021

No Patient Left Behind

RT @DrugChannels: Latest @CMSGov #NHE data again confirm huge discrepancy in patients' out-of-pocket exposure to costs of #drugs vs. #hospi…

Mon Dec 20 01:19:58 +0000 2021

No Patient Left Behind

"When a specialist referred Dingwell to a COVID clinic, they told her insurance would not cover the majority of her treatment." What are premiums for if insurance does not cover prescribed treatments? Join the fight for reform @NPLB_org @loopcoalition https://t.co/frAE8uLFk9

Sun Dec 19 14:36:52 +0000 2021

No Patient Left Behind

RT @RIPMedicalDebt: Over a five-year period, 24% of pregnant and postpartum women in a study reported unmet health care needs due to cost;…

Sat Dec 18 18:29:31 +0000 2021

No Patient Left Behind

RT @G17Esiason: Proud to sign this letter on behalf of @cysticfibrosis to urge congressional leaders not to skew the next generation of med…

Thu Dec 16 16:50:09 +0000 2021

No Patient Left Behind

“It is great to incentivize biologics, but if you do that by hurting small molecules you are hurting patients.” https://t.co/iBDFaqR8Fc

Thu Dec 16 16:20:32 +0000 2021

No Patient Left Behind

Thank you @NPLB_org supporters! ~200 advocates, investors, & biopharma CEOs sign letter urging key BBB fixes: Further lower Rx OOP costs; Ensure small & large molecule R&D parity. #BBB can be "better" for patients, innovators, payers, & society! https://t.co/f8343wjKGu

Thu Dec 16 00:11:52 +0000 2021

Our goals

Make sure that everyone in America has affordable healthcare they can actually use and guarantee that our country continues to invest in new medicines that will help patients now and in the future.

Eliminate
out-of-pocket costs

Expand insurance
to everyone

Ensure that all drugs go generic

News & updates

NPLB Submits Comments on Medicare Drug Price Negotiation Program to CMS

Read NPLB's proposed fixes for successful IRA implementation

NPLB Submits Small Biotech Exception Comments to CMS

IRA's time-limited small biotech "exception" will not work as intended

Biotech leaders call on peers to lobby for IRA change

Letter calls nine-year price-setting threshold a threat to entire industry

Boston Business Journal: How the Inflation Reduction Act (IRA) already is changing how biotechs do business

Fear that IRA will disincentivize the development of small-molecule drugs

New NPLB Video Illustrates Why Patients Deserve Better Math to Value New Drugs

Insurance companies harm patients by not taking into account the true value of medicines.

The impact on cost-effectiveness of accounting for generic drug pricing: Four case studies

Accounting for generic pricing is crucial to improving health technology assessment validity.

We're determined to help you get the care and medicines your doctors say you need.

We are dedicated to creating and maintaining patient access to affordable drugs by holding both insurance and pharmaceutical companies accountable for their policies and practices.

Out-of-Pocket Report

Measuring the damage: IRA’s impact on small molecule drug development

Measuring the damage: IRA’s impact on small molecule drug development

Steve Potts

When Healthcare and Financial Aid Aren't Available at the Touch of a Computer Keyboard

When Healthcare and Financial Aid Aren't Available at the Touch of a Computer Keyboard

Jodi McCaffrey

Your Health Insurance--and Your Health--Can Depend On Where You Live

Why Won't Insurance Cover the Medication Your Doctor Prescribed?

NPLB Book Club

Americans Owe $140 Billion in Medical Debt. The People Who Collect It Say It’s Not Their Fault.

Affordability and Innovation

We are championing new laws to get insurance companies to do away with copays and out-of-pocket expenses.

We are pushing for reforms to guarantee that drug companies let their drugs go generic when they're supposed to do so.

Explore our cause

Help for patients

Don’t despair. There’s help for you: assistance with copays, deductibles and other expenses.

Our strategy

Coalition building. Raising awareness. Encouraging innovation. Changing perceptions and policy. Making medicines affordable.

Our presentations

Clear-cut ideas and solutions. The science, economics and policy of affordability and innovation.

Did you know?

Increasing out-of-pocket costs by just $10 per prescription causes a 33% rise in mortality because fewer patients take the drugs their doctors prescribe.

Source: National Bureau of Economic Research, https://www.nber.org/papers/w28439 Get involved