https://www.nopatientleftbehind.org/press-releases-1 daily 0.75 2026-02-09 https://www.nopatientleftbehind.org/press-releases-1/nplb-welcomes-new-executive-director monthly 0.5 2026-02-09 https://www.nopatientleftbehind.org/press-releases-1/new-analysis-reveals-health-exchange-plans-shifted-costs monthly 0.5 2025-09-17 https://www.nopatientleftbehind.org/press-releases-1/new-study-highlights-challenges-in-medicare-part-d-access-sn433 monthly 0.5 2025-06-04 https://www.nopatientleftbehind.org/press-releases-1/new-study-highlights-challenges-in-medicare-part-d-access monthly 0.5 2025-03-12 https://www.nopatientleftbehind.org/press-releases-1/new-study-reveals-concern-over-prescription-price-controls-and-access monthly 0.5 2025-02-12 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8b227c50-8749-436b-ade4-6165c470d51c/NPLB+Branded+One+Pager.jpg Press Releases - New Study Reveals Widespread Concern over Prescription Price Controls, Costs, and Access - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/press-releases-1/nplb-statement-on-murder-of-brian-thompson monthly 0.5 2024-12-12 https://www.nopatientleftbehind.org/press-releases-1/economists-update-cea monthly 0.5 2024-11-11 https://www.nopatientleftbehind.org/press-releases-1/getting-the-math-right-ispor-2024 monthly 0.5 2024-05-04 https://www.nopatientleftbehind.org/press-releases-1/feral-trade-commission-zero-copay monthly 0.5 2024-06-21 https://www.nopatientleftbehind.org/press-releases-1/investors-and-innovators-representing-more-than-309b-in-biotech-assets-and-624-new-drugs-in-development-urge-the-congressional-budget-office-to-update-its-drug-rampd-policy-impact-model monthly 0.5 2024-07-17 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/b66a2302-e234-4f44-be95-2a9e3eb59264/CBO%2BRx%2BLetter_2024_01-17%2B%28dragged%29.png Press Releases - Investors and Innovators Representing more than $309B in Biotech Assets and 624 New Drugs in Development Urge the Congressional Budget Office to Update its Drug R&D Policy Impact Model - In a letter sent on Tuesday by No Patient Left Behind (NPLB), investors representing $309 billion in assets under management and executives of drug companies developing 624 drug candidates shared their real-world experience and highlighted the economic principles that underpin how investors make decisions about funding early-stage biomedical research. https://www.nopatientleftbehind.org/press-releases-1/statement-background-info-regarding-the-institute-for-clinical-and-economic-reviews-icer-proposed-value-assessment-framework monthly 0.5 2023-11-15 https://www.nopatientleftbehind.org/press-releases-1/9cc9uweovvjc4a9mgclflpdoy41hjo monthly 0.5 2024-03-04 https://www.nopatientleftbehind.org/press-releases-1/nplb-statement-on-icers-flawed-value-assessment-framework monthly 0.5 2024-03-04 https://www.nopatientleftbehind.org/press-releases-1/new-nplb-video-illustrates-why-patients-deserve-better-math-to-value-new-drugs monthly 0.5 2024-03-04 https://www.nopatientleftbehind.org/press-releases-1/9dsf2yp4yz258gcdzmzolf5f5g7ua4 monthly 0.5 2024-03-05 https://www.nopatientleftbehind.org/press-releases-1/jx8pybvhgezuso1r6qhddveuf1cb9n monthly 0.5 2024-03-05 https://www.nopatientleftbehind.org/press-releases-1/tzjf91qjj43p47d205ktoxcp68qhwk monthly 0.5 2024-03-05 https://www.nopatientleftbehind.org/press-releases-1/nplb-cms-rule-to-lower-maximum-out-of-pocket-costs-by-400-will-help-patients-more-reductions-needed monthly 0.5 2024-03-05 https://www.nopatientleftbehind.org/press-releases-1/48w3b16hmvfly489ud8888hz57giuh monthly 0.5 2024-02-26 https://www.nopatientleftbehind.org/press-releases-1/gq18tv1pmcvpzo7bbrn6pw8nomso88 monthly 0.5 2024-03-05 https://www.nopatientleftbehind.org/press-releases-1/category/featured monthly 0.5 https://www.nopatientleftbehind.org/press-releases-1/category/Press+Release monthly 0.5 https://www.nopatientleftbehind.org/press-releases-1/tag/filter monthly 0.5 https://www.nopatientleftbehind.org/resource-materials daily 0.75 2026-03-03 https://www.nopatientleftbehind.org/resource-materials/2025-impact-report monthly 0.5 2026-02-09 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/01a778ab-6ca7-4b00-9463-e520653c86ba/ImpactReportJPEG.png Resource Materials - 2025 NPLB Impact Report - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/decoding-the-fine-print-recommended-resources monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/decoding-the-fine-print-terms-and-definitions monthly 0.5 2026-01-05 https://www.nopatientleftbehind.org/resource-materials/impact-on-massachusetts monthly 0.5 2026-03-03 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/c25ed27c-bedb-4b6f-9c04-b627b8120c1c/ImpactOnPatients.jpeg Resource Materials - MEMO: Impact of H.R. 6166 on Massachusetts Economy and Patients - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/comic-13 monthly 0.5 2025-12-15 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/c488fc13-60e8-42f1-84cf-8a3181f54d83/Comic13.jpeg Resource Materials - Tiny Cost, Vast Reward - Make it stand out Comic by: Jaime Arroyo de Lagasca Encinas. 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Link to the full post here. https://www.nopatientleftbehind.org/resource-materials/evidence-based-policy-and-public-health-security monthly 0.5 2025-12-05 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8c9e07d1-97dd-4c6a-b2ad-4e309bba65c2/NEJM+Support+Letter+Thumbnail.jpeg Resource Materials - Supporting the Call for Evidence-Based Policy and Public Health Security - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/comic-5 monthly 0.5 2025-12-05 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/096320e7-50c1-4052-b44a-0e13012bfcc2/Comic10.jpeg Resource Materials - Skin in the Game: An Insurance Shame - Make it stand out Comic by: Darius Walker. 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Link to the full post here. https://www.nopatientleftbehind.org/resource-materials/comic-2 monthly 0.5 2025-11-24 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1dcbd907-96d9-47a5-b99b-9abd49f35f88/Comic2.jpeg Resource Materials - I Don’t Trust Shots, But I Trust You - Make it stand out Comic by: Peter Kolchinsky. Link to the full post here. https://www.nopatientleftbehind.org/resource-materials/comic-3 monthly 0.5 2025-11-24 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6c5df807-2840-4705-8e64-897f8b7432c8/Comic2.jpeg Resource Materials - The Massachusetts Paradox - Make it stand out Comic by: Peter Kolchinsky. Link to the full post here. https://www.nopatientleftbehind.org/resource-materials/comic-10 monthly 0.5 2025-11-24 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/a1d4959d-9324-4265-8150-e2f18c6f9719/Comic7.jpg Resource Materials - The Home Mortgage Analogy - Make it stand out Comic by: Sofia Brites Boss. 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Link to the full post here. https://www.nopatientleftbehind.org/resource-materials/the-importance-of-a-strong-and-predictable-fda monthly 0.5 2025-12-04 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/5a0f4522-b8e3-4510-b79e-3083112400da/TheImportanceFDA.jpeg Resource Materials - A Letter to FDA Commissioner Marty Makary on the Importance of a Strong and Predictable FDA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/cti-3 monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/cti-2 monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/cti-1 monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/recommended-resources-fda monthly 0.5 2025-09-17 https://www.nopatientleftbehind.org/resource-materials/terms-and-definitions monthly 0.5 2025-09-16 https://www.nopatientleftbehind.org/resource-materials/fixing-insurance-gaps monthly 0.5 2025-10-30 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/fcd0f41e-2a8e-41a9-8bab-531e489899e5/OOPReportThumbnail.jpeg Resource Materials - 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No More Freeriding on the Great American Drug Deal - Make it stand out Figure 1 plots adjusted relative price vs “Fair” relative price, sorted by increasing GDP per capita PPP, and tracks our basket of branded drugs only. SOURCE: RAND, CIA, RA Capital Management. The Freeriding Index is shown for each country and measures the percent by which the Adjusted Relative Price is lower than the “Fair” Relative Price. https://www.nopatientleftbehind.org/resource-materials/our-quest-to-combat-lupus monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-conquer-arthritis monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-defeat-cystic-fibrosis monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-treat-multiple-sclerosis-ynt9h-azjz3 monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/protect-american-competitiveness-from-price-controls monthly 0.5 2025-05-14 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/d67ba3f2-d99b-4d29-bab8-6ca9d94a5ee5/Advocacy+Thumbnail+w+Image+%28MFN%2C+Guthrie+letter%29.png Resource Materials - Importing European-Style Price Controls Will Gut US Biomedical Innovation - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/ex-us-report-skk88 monthly 0.5 2025-10-29 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/91accb62-8d6e-40c1-b87e-1b627bc071fe/Research+thumbnail+w+image+%28long+ex-US+report%29.png Resource Materials - Valuing Healthcare Innovation - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/our-quest-to-treat-multiple-sclerosis-ynt9h monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-treat-multiple-sclerosis monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-defeat-parkinsons-disease monthly 0.5 2025-08-16 https://www.nopatientleftbehind.org/resource-materials/ex-us-report monthly 0.5 2025-05-07 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/0b4cca8e-e423-47a2-aea7-378c50929516/Screenshot+2025-04-28+at+5.30.03+PM.png Resource Materials - Foreign countries rely on flawed and outdated HTA or ”value assessment” methods to justify low prices for medicines - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/legislation-tracker monthly 0.5 2025-04-28 https://www.nopatientleftbehind.org/resource-materials/recommended-resources monthly 0.5 2025-09-16 https://www.nopatientleftbehind.org/resource-materials/glossary-of-health-insurance-terms monthly 0.5 2025-04-25 https://www.nopatientleftbehind.org/resource-materials/massachusetts-paradox monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/preserving-the-fda monthly 0.5 2025-05-07 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/f04fd1fe-db54-4bf5-8778-b945a710db05/Advocacy+Thumbnail+w+Image+%28FDA+Cassidy+Letter%29.png Resource Materials - A Letter to Senate HELP Committee Chairman Bill Cassidy on Preserving and Modernizing the FDA - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/price-controls-hinder-treatment-access-in-medicare-part-d monthly 0.5 2025-04-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/fadfedab-c74d-4aba-853a-e5a77554c202/Price+Controls+Hinder+Treatment+Access+in+Medicare+Part+D.jpg Resource Materials - Price Controls Hinder Treatment Access in Medicare Part D - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/end-unfair-trade-practices-in-drug-pricing monthly 0.5 2025-07-02 https://www.nopatientleftbehind.org/resource-materials/our-quest-to-beat-autoimmune-disorders monthly 0.5 2026-03-17 https://www.nopatientleftbehind.org/resource-materials/rc4g4zrixvpbv7soqspxmzdgqqbszk monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/public-comment-use-tariff-and-market-access-tools-to-force-oecd-countries-to-pay-their-fair-share monthly 0.5 2025-04-02 https://www.nopatientleftbehind.org/resource-materials/protect-american-innovation monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/consumers-sound-alarm-state-price-controls-will-limit-access-without-lowering-patient-costs monthly 0.5 2025-06-04 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/58aac445-2fca-4ddf-9e9f-aa6e4111a465/NPLB+Branded+One+Pager.jpg Resource Materials - Consumers sound alarm: state price controls will limit access without lowering patient costs - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/open-letter-fda-budget-cuts monthly 0.5 2025-02-19 https://www.nopatientleftbehind.org/resource-materials/defend-nih-letter monthly 0.5 2025-02-19 https://www.nopatientleftbehind.org/resource-materials/nplb-cy26-public-comment monthly 0.5 2025-02-20 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/36a2af54-8c0d-4d5b-8876-c3d4fc3df8ce/NPLB+CY26+Comments+%28dragged%29.jpg Resource Materials - Public Comment: Allow Medicare to cover anti-obesity medications (AOMs) and strengthen patient protection “guardrails” through better oversight of Medicare Advantage Part D (MAPD) plans. - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/quantifying-genericization monthly 0.5 2024-12-06 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8e454534-5195-488d-a03c-161919137fe0/Research+thumbnail+w+image+%28Genericization+COGS%29.png Resource Materials - Estimating a Drug’s Price After Loss of Exclusivity as a Function of Its Cost of Goods Sold - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/gcea-user-guide monthly 0.5 2025-03-17 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/a000e50c-65bf-43ac-88e2-f9743c720d7f/Valuing+Health+Technology%E2%80%99s+Total+Societal+Impact+02202024+%28dragged%29.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - For decades, economists have attempted to quantify the value of medicines using incomplete models that overlooked a drug’s broader value. For decades, economists have attempted to quantify the value of medicines using incomplete models that overlooked a drug’s broader value. These outdated, conventional “cost-effectiveness analyses” failed to capture the elements of value that benefit society. Conventional cost-effectiveness math can harm patients and society when flawed estimates are used by public or private payers as the basis to deny coverage or to charge high out-of-pocket costs to patients in dire need of essential treatments. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/ae842147-3002-4d7e-98ed-f6f2046d3ceb/NPLB_GCEA+ISPOR+petals.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - The authors categorize the paper’s fifteen elements of value into four categories: uncertainty dynamics beneficiary additional value components https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/546edc6e-aa4b-41bd-ad8b-28825fc3a5fd/NPLB_GCEA+Checklist.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - The paper provides economists and evaluators a checklist for future studies with suggested methods for measurement and operationalization. This checklist could be added to cost effectiveness analysis manuscripts to help journal reviewers and readers understand which value petals were and were not included in the evaluation. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1a9a251f-0f91-4153-b608-519dcb40187c/NPLB_GCEA+Flower_web_1800Sq_01_2024.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6a6cef32-567d-481d-9ba4-3e0c222844ab/NPLB_GCEA_Caregiver+Spillover+_Fig8.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/767ea19b-46ee-4d90-b2b8-a0794be03816/NPLB_GCEA+Community+Spillover+_Fig+9.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/0355e9bb-3d7d-413f-90f8-d9af73bfce12/NPLB_GCEA_Figure+2.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1c7d60ec-2e4a-4461-9d27-a3201db77b64/Denver-Headshot-Co00009_small-size.jpg Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/942e088c-c53c-4be9-a4bc-f6713201631a/Lou-Garrison_2015-BoD-Meeting_8x10.jpg Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/436d6563-a63c-46e4-8e52-d1dd4a016d25/Richard-Willke-image-e1660591633303+%281%29.png Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/4fffb9c4-dfdd-434d-a31e-bf5156e9f987/unnamed.jpg Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/c064876c-0b4e-40f0-bb8a-71004470ef60/Peter-Neumann_square.jpg Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/c25c527e-73ef-4985-8d3d-5c4a45ad7dbe/300x420.jpg Resource Materials - NEW REPORT: Valuing the Societal Impact of Medicines and Other Health Technologies: A User Guide to Current Best Practices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/gzaiyg6rwl1hsyy4ce4h59nqa0w75e monthly 0.5 2024-10-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/65c8cbe5-0c0b-4ebe-ac9a-59bb312ee769/NPLB+Webinar+on+R%26D+%28dragged%29.png Resource Materials - Comprehensive measurement of biopharmaceutical R&D investment - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/4whljufjj28bsxkytiaigmvctruzg8 monthly 0.5 2024-10-29 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/968881c5-2b56-47cb-8d14-7e97fbb2c1c3/NPLB+webinar+20241025+%28dragged%29.png Resource Materials - How does price setting at 9 years impact the NPV of a small molecule at time of launch? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/public-comment-2024-cms-ira-guidance monthly 0.5 2025-04-02 https://www.nopatientleftbehind.org/resource-materials/j9yk2v9mfzftn8528fan30fdwy2xiw monthly 0.5 2024-05-13 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/2a80eb79-92c9-4bf8-96ca-aa230a891fc6/ISPOR+2024_Xie_IRA+case+study+slides+%28dragged%29.png Resource Materials - The Impact of the Inflation Reduction Act on Early-Stage Biomedical Investment Decisions - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/pv54ur5lkn6ivmeyg7bkbedtssjdpn monthly 0.5 2024-05-13 https://www.nopatientleftbehind.org/resource-materials/its-time-to-reconsider-the-three-percent-discount-rate monthly 0.5 2024-03-29 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/eef6e21c-2a3d-41a0-b7be-8518b860f350/Research+thumbnail+w+image+%28discount+rate%29.png Resource Materials - Value in Health: It’s time to reconsider the three percent discount rate. - Make it stand out Value in Health: It’s time to reconsider the three percent discount rate. https://www.nopatientleftbehind.org/resource-materials/uergj95f5urtm3xrl1vlo6eynqdx48 monthly 0.5 2024-05-14 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1c952bb3-4161-441e-af99-8c8090df5967/Research+thumbnail+w+image+%28BMJ+paper%29.png Resource Materials - Is the price right? Paying for value today to get more value tomorrow - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/modeling-impacts-on-innovating monthly 0.5 2025-02-06 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/f206c8dd-7e3c-41c3-8244-714c90d88eac/CBO+Rx+Letter_2024_01-17+%28dragged%29.png Resource Materials - NEW LETTER: Investors and executives urge the Congressional Budget Office to adopt changes to its modeling - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/when-simpler-isnt-better-a-case-for-generalized-cost-effectiveness-analysis monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/50aef418-8041-4534-88f1-c208c20a1450/When+simpler+isn%27t+better%2C+thumbnail.png Resource Materials - When simpler isn’t better: a case for generalized cost-effectiveness analysis - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/why-the-discount-rate-is-exciting monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/d186c71e-aa83-4f85-afdc-1fba39b56f0a/Why+the+discount+rate+is+exciting%2C+thumbnail.png Resource Materials - Why the discount rate is exciting! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/a-primer-on-generalized-cost-effectiveness-analysis monthly 0.5 2024-03-29 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/550c97a2-7ebf-4ad9-b111-93082d3bcb93/A+primer+on+GCEA%2C+thumbnail.png Resource Materials - A primer on Generalized Cost-Effectiveness Analysis - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/healthcare-affordability-innovation monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/801e598e-c2b7-49cf-b8f3-685c527ff6a2/Healthcare+Affordability+%26+Innovation%2C+thumbnail.png Resource Materials - Healthcare Affordability + Innovation - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/how-public-funding-incentives-and-private-funding-function-together-to-enable-all-of-us-to-get-what-we-want-new-medicines monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/d3365a4f-0511-4103-b555-000f0f064941/Mountain+climbing%2C+thumbnail.png Resource Materials - How public funding, incentives, and private funding function together to enable all of us to get what we want: new medicines - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/whats-the-big-deal-about-cutting-the-biggest-selling-drugs-down-to-just-being-reasonably-profitable monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/103a2dfc-10e5-473e-b2ee-acdb2a34ba35/Cutting+the+biggest+selling+drugs%2C+thumbnail.png Resource Materials - What’s the big deal about cutting the biggest selling drugs down to just being reasonably profitable? - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/how-to-kill-the-conversation-that-makes-innovation-possible monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/c9d5b128-0c0d-4fdb-8229-a6c5f5ce6d3f/How+to+Kill+the+Conversation+That+Makes+Innovation+Possible%2C+thumbnail.png Resource Materials - How to Kill the Conversation that Makes Innovation Possible - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/how-biopharama-innovation-happens monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/28717397-34c4-4e1e-b9f7-a6271136f61c/How+Biopharama+Innovation...+Happens%2C+thumbnail.png Resource Materials - How Biopharama Innovation… Happens - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/the-harmful-consequences-of-the-us-adopting-the-uks-math-for-setting-drug-prices monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6cfb10f9-683e-4e7e-b8f0-2e36bfc7407e/UK+math%2C+thumbnail.png Resource Materials - The Harmful Consequences of the US Adopting the UK’s Math for Setting Drug Prices - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/how-the-ira-makes-new-small-molecule-biotech-rampd-uninvestable-for-diseases-of-aging monthly 0.5 2024-03-28 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/b72d485e-3d18-43f6-86df-6958a718d6de/Copy+of+9-13+Small+Molecule+Slides+%28March%29.png Resource Materials - How the IRA makes new small molecule biotech R&D uninvestable for diseases of aging - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/the-investors-paradox monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/affordability-amp-innovation monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/9ojgthejx7rjt37dni5n99uole0x39 monthly 0.5 2024-03-06 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/efc5f0fb-961f-455f-9010-da5562a7117c/AJMC+HCV+GCEA.png Resource Materials - The American Journal of Managed Care: Generalized Cost-Effectiveness Analysis to Assess Treatment Value in Hepatitis C - Make it stand out Generalized Cost-Effectiveness Analysis to Assess Treatment Value in Hepatitis C https://www.nopatientleftbehind.org/resource-materials/3j2kdr9kbqzumib3cajbj1gaqwmtir monthly 0.5 2024-11-04 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/e7eff151-dd28-48f9-8bd7-67fb2bf5bbae/Screenshot+2024-11-04+at+11.45.55+AM.png Resource Materials - Beyond total revenues: How the IRA impacts investors’ early-stage R&D decision-making - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/inventing-new-medicines monthly 0.5 2026-01-06 https://www.nopatientleftbehind.org/resource-materials/4wrddq4u40fbg0gvodo7lpynk207a4 monthly 0.5 2024-11-25 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/de7efd6e-a317-4dc6-a729-6278bcba8b34/64dfbb2f18ffba59f93b7ecd_GCEA_Compiled+figures-FINAL-300dpi-p-1080.png Resource Materials - Getting the math right when measuring the value of new medicines - Key findings: In traditional CEA, 8 of the 20 medicines produced value for money. However, accounting for diminishing returns and dynamic pricing revealed that 17 of 20 produced value for money in our benchmark scenario, and 18 did so in a sensitivity analysis employing larger but plausible price declines after loss of market exclusivity. In 13 of 20 cases in the benchmark scenario (or 14 of 20 in the sensitivity analysis), the majority of value flowed not to innovators but to the rest of society. Traditional CEA methods omit sources of social value that appear quantitatively significant. Applying GCEA in health technology assessment can lead to more complete and accurate estimates of societal value, facilitating more efficient resource-allocation better aligned with the welfare of patients present and future. https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/304f0475-f0c6-4199-a385-69c385305bd4/Getting+The+Math+Right+Thumbnail.png Resource Materials - Getting the math right when measuring the value of new medicines - Make it stand out Getting the math right when measuring the value of new medicines https://www.nopatientleftbehind.org/resource-materials/qhyb0bolpu94m7z18l1qg258l8bbri monthly 0.5 2024-06-26 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/80073c18-817f-4649-ae50-20a3c890db57/032023+PKPT+9-13+letter.docx+%28dragged%29.png Resource Materials - Sign-on letter: Why Fixing the IRA Matters to all of us - Key Takeaways: Small molecule biotech R&D will become uninvestable for diseases of aging. Cancer innovation will be hit particularly hard Higher costs for society because small molecules pills are cheaper to manufacture, administer, & copy than large molecule shots. https://www.nopatientleftbehind.org/resource-materials/public-comment-protect-patients-when-implementing-the-price-setting-provisions-of-the-inflation-reduction-act monthly 0.5 2024-06-26 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6b3cf2da-8521-46c6-a161-a70d5164d1c2/CMS+Letter+April+2023%2C+thumbnail.png Resource Materials - Public Comment: Protect patients when implementing the price setting provisions of the Inflation Reduction Act - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.nopatientleftbehind.org/resource-materials/mifepristone-ruling-biotech-leaders-defend-fdas-autonomy-and-authority monthly 0.5 2024-06-26 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https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/56e46e0d-df89-44b6-888f-15bb75b03a08/1569454658773.jpeg https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/382866ae-f75b-48fe-8dcc-baee6239c354/1651887202191.jpeg https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/ab4e6296-425f-4b8c-8435-49d4baaeec9d/1708907417063.jpeg https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/f4698a40-d1c8-41b3-9407-2950b3a1f3d5/1670822966678.jpeg https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/b66ac0d5-9af3-4f72-868d-bb951484e8c8/maxresdefault.jpg https://www.nopatientleftbehind.org/share-your-story daily 0.75 2025-03-31 https://www.nopatientleftbehind.org/patient-stories daily 0.75 2025-03-31 https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/768bd02b-103a-4f26-b57e-439e5afa811d/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_black_BEATA.jpg Patient Stories “It takes a toll on my monthly budget. I’ve had to not pay for other things I need to[, in order to] pay off medical expenses.” —Beata Zawada, Illinois https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6de6c6d6-2b12-4fee-b45c-d9a268009642/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_blue_WEEZA.jpg Patient Stories "I had an extremely aggressive [form of] breast cancer. In the 3 weeks between my biopsy & surgery it doubled in size. Without Herceptin, my statistical chance of surviving 5 years was nil. That was 15 years ago." —Weeza Matthias, ME https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/9051a6b3-cae7-443f-99b2-ef235ddebe16/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_black_KAY.jpg Patient Stories “[It’s important for patient perspectives to be considered in value assessments and healthcare policy decisions…] because as patients, along with our doctors, we know our needs best.” —Kay Davidson, Kansas https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/768bd02b-103a-4f26-b57e-439e5afa811d/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_black_BEATA.jpg Patient Stories “It takes a toll on my monthly budget. I’ve had to not pay for other things I need to[, in order to] pay off medical expenses.” —Beata Zawada, Illinois https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/6de6c6d6-2b12-4fee-b45c-d9a268009642/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_blue_WEEZA.jpg Patient Stories "I had an extremely aggressive [form of] breast cancer. In the 3 weeks between my biopsy & surgery it doubled in size. Without Herceptin, my statistical chance of surviving 5 years was nil. That was 15 years ago." —Weeza Matthias, ME https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/9051a6b3-cae7-443f-99b2-ef235ddebe16/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_1_black_KAY.jpg Patient Stories “[It’s important for patient perspectives to be considered in value assessments and healthcare policy decisions…] because as patients, along with our doctors, we know our needs best.” —Kay Davidson, Kansas https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/961db0ff-621d-4ce7-9845-cd6ff2eba9c9/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_4_blue_DALAL.jpg Patient Stories "[The cost of healthcare causes] financial hardships and added pressure to maintain work for both parents on top of the constant [specialist medical] needs of our complex child and [an]other child who is younger. Time equals money - and if we don’t have money[,] we need to wait and wait and wait for the system [to work. But if we] end up waiting [too long, we] risk regression." —Dalal Baumgartner https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/3e48115f-5abc-468c-bcf9-25e4bf62c332/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_black_MARY+CAROL+HERRINGTON.jpg Patient Stories “It took me 4 months to save up for screening. I’m still waiting for test results, but, if confirmed as suspected, it will save my life. The sooner an illness or disorder is identified, the better it is for my prognosis. When I need medical attention I need it NOW, not later. With breast cancer, every minute counts toward successful treatment and metastasis spread. Let doctors be doctors and let patients heal. It does me no good to have doctors if they CANNOT treat me. High copays & diagnostics limit me to 1 doctor or test per month. My heart issue was spaced over 3 months; liver spaced over 3 months; lungs over 5 months. I still have dental, eyes & hearing [issues] to address [too] …[but] I guess that's [going to have to wait until] next year.” —Mary Carol Herrington, Texas https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/4dc1b3d6-73d2-43f5-adb8-ea073a3893d0/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_blue_JOHNDOE.jpg Patient Stories “[My] relative cannot afford newer developments such as continuous glucose monitors and occasionally has hypoglycemic unawareness. “The golden rule should apply. At least the thought of what if this was you or your loved one's situation should factor in [to value assessments and healthcare policy] decisions.” —Anonymous https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8b81fba9-6852-4612-9ec5-879f4e0c462b/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_black_LANA.jpg Patient Stories “The insurance carrier repeatedly insisted other treatments may be as effective [to manage my eczema and allergic rhinitis], even though I was clearly allergic to one or more ingredients. [They] dragged the process out by insisting on additional appeals, requesting treatment notes from the same doctor but previous practice…before agreeing to cover the medication in question 5 months later. Some patients do not have the patience to wait 5 months for treatment, and just give up seeking medical care, thinking it is all futile as none of the treatments will be covered. [All of the back and forth with my insurance] left me in limbo, with [my] providers feeling powerless…We tried all other viable options with lackluster results.” —Lana Citowsky, Massachusetts https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/3e48115f-5abc-468c-bcf9-25e4bf62c332/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_black_MARY+CAROL+HERRINGTON.jpg Patient Stories “It took me 4 months to save up for screening. I’m still waiting for test results, but, if confirmed as suspected, it will save my life. The sooner an illness or disorder is identified, the better it is for my prognosis. When I need medical attention I need it NOW, not later. With breast cancer, every minute counts toward successful treatment and metastasis spread. Let doctors be doctors and let patients heal. It does me no good to have doctors if they CANNOT treat me. High copays & diagnostics limit me to 1 doctor or test per month. My heart issue was spaced over 3 months; liver spaced over 3 months; lungs over 5 months. I still have dental, eyes & hearing [issues] to address [too] …[but] I guess that's [going to have to wait until] next year.” —Mary Carol Herrington, Texas https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/4dc1b3d6-73d2-43f5-adb8-ea073a3893d0/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_blue_JOHNDOE.jpg Patient Stories “[My] relative cannot afford newer developments such as continuous glucose monitors and occasionally has hypoglycemic unawareness. “The golden rule should apply. At least the thought of what if this was you or your loved one's situation should factor in [to value assessments and healthcare policy] decisions.” —Anonymous https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/836d90e4-e9f2-4a94-84ac-60c6ad10d2ed/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_3_blue_DEBBIE.jpg Patient Stories “Insurance started [the process, but] never finished. If we were well enough we would have gone to court. [The whole process with my insurance caused significant] emotional strain. I have no office. I'm disabled. [They] said it was okay to fax [over my paperwork, but even] that costs money. First I'm told it was received, then not received. Then they told me they could not read it. It's one thing after another….[the] system is not working. Stop using bureaucrats to decide our treatments. Listen to [the actual] doctors.” —Debbie Nassau, Maryland https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/961db0ff-621d-4ce7-9845-cd6ff2eba9c9/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_4_blue_DALAL.jpg Patient Stories "[The cost of healthcare causes] financial hardships and added pressure to maintain work for both parents on top of the constant [specialist medical] needs of our complex child and [an]other child who is younger. Time equals money - and if we don’t have money[,] we need to wait and wait and wait for the system [to work. But if we] end up waiting [too long, we] risk regression." —Dalal Baumgartner https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8b81fba9-6852-4612-9ec5-879f4e0c462b/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_black_LANA.jpg Patient Stories “The insurance carrier repeatedly insisted other treatments may be as effective [to manage my eczema and allergic rhinitis], even though I was clearly allergic to one or more ingredients. [They] dragged the process out by insisting on additional appeals, requesting treatment notes from the same doctor but previous practice…before agreeing to cover the medication in question 5 months later. Some patients do not have the patience to wait 5 months for treatment, and just give up seeking medical care, thinking it is all futile as none of the treatments will be covered. [All of the back and forth with my insurance] left me in limbo, with [my] providers feeling powerless…We tried all other viable options with lackluster results.” —Lana Citowsky, Massachusetts https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/836d90e4-e9f2-4a94-84ac-60c6ad10d2ed/assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_3_blue_DEBBIE.jpg Patient Stories “Insurance started [the process, but] never finished. If we were well enough we would have gone to court.” “[The whole process with my insurance caused significant] emotional strain. I have no office. I'm disabled. [They] said it was okay to fax [over my paperwork, but even] that costs money. First I'm told it was received, then not received. Then they told me they could not read it. It's one thing after another….[the] system is not working. Stop using bureaucrats to decide our treatments. Listen to [the actual] doctors.” —Debbie Nassau, Maryland https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/3a64bf27-833d-426e-aee3-5b19fd76879c/HeroBanner_FG_1920x1080.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/5a500958-6b84-4c4d-af8c-8a59b393e64a/HeroBanner_BG_paper1.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/8a2eca36-bf2b-47f3-ba25-be0424a064e9/HeroBanner_BG_paper2.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/65f30b4e-062b-4fd2-a46b-39287f9abe24/assemble_NPLB_BurnBook_webelements_FG_Section1_Banner_1920x540.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/2ef7f544-116a-4f8d-a909-543051a05a91/assemble_NPLB_BurnBook_webelements_FG_Section2_Banner_1920x540.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/5c377ae2-a46c-45a8-b286-16f0c86c071b/assemble_NPLB_BurnBook_webelements_FG_Section3_Banner_1920x540.png https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1742502433242-4HW95HTHP0D5B69DBH9W/_0000_assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_6_black_anon.jpg Patient Stories https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1742502433297-M0Y3L92S9AENK4I1OFMR/_0001_assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_5_blue_anon.jpg Patient Stories https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1742502434863-FE74HWP1Z136I6MIL3YF/_0002_assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_4_black_anon.jpg Patient Stories https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1742502435196-SQPUZ6US59UFC8GP1LMB/_0003_assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_3_blue_anon.jpg Patient Stories https://images.squarespace-cdn.com/content/v1/64cd442006a5a56807426a21/1742502436238-430MWY0BS4IG3UFBKN06/_0004_assemble_NPLB_BurnBook_PatientTiles_Front_1080x1080_2_black_anon.jpg Patient Stories 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